From finding doctors and understanding the Fragile X diagnosis to starting school and talking about fertility, LivJoy’s community of trusted partners provide support at all of life’s important junctures. Explore the institutions and organizations we support.

HELP & HOPE AT EVERY STEP

RESOURCES

ABOUT FRAGILE X

"Fragile X 101" by National Fragile X Foundation

"What is Fragile X Syndrome" by FRAXA Research Foundation


ABOUT FRAGILE X in females

"Women With Fragile X Struggle to Identify With Disorder, Survey Finds" by Steve Bryson, PhD 

"Females with Fragile X Syndrome: An Overview" by Ave M. Lachiewicz, MD, Duke University Child Development Center 

PODCAST: "My Perfect Family: Fragile X" on Attitude.

"The Unique Challenges for Females with Fragile X Syndrome" by the National Fragile X Foundation

"Closing the Gender Gap in Fragile X Syndrome: Review of Females with Fragile X Syndrome and Preliminary Research Findings" by Kristi L. Bartholomay, Cindy H. Lee, Jennifer L. Bruno, Amy A. Lightbody, and Allan L. Reiss, Brain Sci. 2019