Founded by a family of girls with Fragile X, The LivJoy Foundation is dedicated to finding and funding resources that enable girls with Fragile X Syndrome to live a life full of joy. We do so by financially supporting well-managed, high-performing organizations that align with our areas of focus.
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We aim to support medical research into treatment for females with Fragile X. More research is necessary to understand how the genetic disorder affects females from infancy through adulthood and into old age. LivJoy supports the overall goal of conquering Fragile X while focusing specifically on its unique effects on females.
The more we learn, the more effective our interventions and support structures become in assisting females with Fragile X to live personally fulfilling lives. Support for females with Fragile X needs to start early and continue throughout adulthood. The right school, camp, or social group can be life-changing for a girl with Fragile X. LivJoy seeks to identify these programs and make them more accessible.
It is imperative that the world learns more about Fragile X in females, as many often go undiagnosed. In addition to increased awareness of the disorder, we support organizations that advocate for and draw attention to the uniqueness of females with Fragile X and their everyday struggles.
The LivJoy Foundation’s mission is to find, fund, and share programs that enable girls with Fragile X Syndrome to live a life full of joy.