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WHY THIS SERIES MATTERS

At LivJoy Foundation, we are deeply committed to the unique needs of girls and women with Fragile X syndrome — needs that have too often been overlooked. That’s why we proudly partner with the National Fragile X Foundation to present this special webinar series focused on females with FXS.

Guided by real feedback from our joint survey of females with FXS and their families, the series delivers targeted, practical guidance on living a healthy, joyful life — physically, mentally, and emotionally. We shine a light on the differences females experience and empower them with the support they deserve.

All webinars are hosted and recorded by the National Fragile X Foundation. Watch the full recordings, summaries, and resources on the NFXF webinar page.

Every female with FXS deserves to be seen, supported, and celebrated!


WEBINARS LIBRARY

April 14, 2026 | ~60 minutes
In the first webinar of the series, experts explore the presentation of anxiety in females with FXS and share helpful tools and strategies to manage it across different settings and throughout the lifespan.
Watch Now on NFXF

May 20, 2026 | ~56 minutes
Experts discuss the unique health, wellness, puberty, and fertility considerations for girls and women with Fragile X syndrome. Topics include puberty conversations, reproductive healthcare, emotional wellness, sleep, exercise, and supporting independence across the lifespan
Watch Now on NFXF

Tools & Tactics for Anxiety

Health, Wellness & Fertility

We are incredibly grateful for this partnership with the National Fragile X Foundation and for each of the panelists who have generously shared their time and expertise to make these webinars valuable. Together, we are building the support system we wish we had years ago.

More to come after the summer. Additional webinars will be added as they become available — check back or subscribe to the NFXF newsletter for updates!

COMING SOON

DEDICATIONS

Questions or ideas for future topics? Contact us — we’d love to hear from you.


QUESTIONS

Watch the introductory presentation from NFXF Executive Director Hilary Rosselot, LivJoy President Rachel Clouse and LivJoy Post Doctoral Fellow Lauren Jenner
Watch Now on NFXF

INTRODUCTION

FUNDRAISING

LivJoy Foundation is a registered 501(c)(3) non-profit organization.
Tax ID: 92-3431438

If you would like to contribute
to the LivJoy Foundation,
click below.